Experiences and Concerns of Family Caregivers Providing Support to People With Dementia: A Cross-Cultural Perspective
Document Type
Peer-Reviewed Article
Publication Date
11-2013
Program
Exercise Science
Abstract
We examined experiences and concerns among caregivers of community-dwelling people with dementia from two ethnic groups. We conducted a thematic analysis of responses to the question, 'What is your life like as a caregiver?' in nine focus groups (n = 75) with Filipino and non-Hispanic White caregivers. Constant comparison methods identified themes by ethnicity. Experiences and concerns expressed across groups were related to care recipient symptoms commonly associated with dementia, including severe memory loss and behavioral changes. Participants in both ethnic groups described strategies that help them cope, such as receiving help from family and friends, receiving respite support, and participating in support groups. Filipino caregivers more often emphasized positive aspects of caregiving, whereas Whites often expressed that others do not understand the daily experiences of caregiving. Filipinos more commonly described caregivers as a 'good person' or 'saint' and emphasized that caregiving made them stronger.
DOI
10.1177/1471301212446872
Recommended Citation
Ivey, Susan et al. "Experiences and Concerns of Family Caregivers Providing Support to People with Dementia: A Cross-Cultural Perspective." Dementia 12.6 (2013): 806-820.
Publication
Dementia
Volume
12
Issue
6
Pages
806-820
Comments
Published: Ivey, Susan L. et al. "Experiences and Concerns of Family Caregivers Providing Support to People with Dementia: A Cross-Cultural Perspective." Dementia 12.6 (2013): 806-820.